Discussion
Just posting to say I'm still home. I've had my most violent seizure ever less than 48 hours ago. I was in bed, thankfully.
My heart has been putting me in trouble since then. I'm getting a bit better tonight, but have been in tachycardia all the time even at rest or when waking up. I'm below 120bpm when standing up today, which is a huge win already...
I'm not as much in pain otherwise I'd have been to the ER, but it's still really bothering and tiring
My oxygen sat is doing yo-yos to deal with tachycardia and it's really not going to be possible like this.
Having seizures a few times daily again.
Iron supplements are causing a gastric and digestive mess, despite doing everything I can to avoid it.
I just can't wait for a transfusion instead... Waiting on Monday to call my pulmo and see what we can do this week. If no room's available I'll go to the ER during a "tachycardia moment"
The worst I've been at was 89% oxygen sat and 171bpm. I'm fully at rest and it helps, but I haven't been able to do anything at all.
Even rubbing a few mistakes on my sudoku put me in tachycardia yesterday, it's really getting out of control. But today's really chill compared to the last two days, so I can't complain.
Hope you all are as alright as possible, please take care
@Testoceratops i won’t complain about my pulse getting stuck at 90-101 any more.
Can’t imagine sitting at 120 bpm